Thursday 30th June 2016- The Guardian: Couple win legal battle against ruling on dead daughter’s eggs

‘A 60-year-old woman who wants to use her dead daughter’s frozen eggs to give birth to a grandchild has won a legal battle over what constitutes medical consent.

The court of appeal has ordered the Human Fertilisation and Embryology Authority (HFEA) to reconsider the application, opening the way for fertility treatment in the United States.

The woman, whose daughter died of bowel cancer in 2011, had asked three judges to allow her to carry out the dying wishes of her “much-loved and only child”. The family have remained anonymous; the court identified the mother as Mrs M.

Her daughter, who was 28 when she died, spent most of the last five years of her life in hospital. She wanted to have IVF treatment but became too ill. At one stage, she suggested having her ovaries transplanted into her mother. Three eggs were eventually removed and stored.

The legal problem the HFEA confronted, the judgment explained, “was that while [the daughter] consented to treatment for egg removal and storage (including storage after her death) and also to the use (other than for research purposes) of her eggs after her death, she never completed any form giving details of the precise use that is now proposed”.

Lawyers for the mother and her husband, referred to only as Mr M, said that if they did not overturn the refusal for treatment, the eggs would be allowed to perish.

Giving judgment, Sir James Munby, who is president of the family division of the high court, Lady Justice Arden and Lord Justice Burnett granted the parents’ appeal. Neither Mr or Mrs M were in court for the ruling.’

‘The judges heard that the daughter, referred to only as A, was desperate to have children and asked her mother to “carry my babies”. Her parents launched legal action against the HFEA’s refusal in September 2014 to allow them to take their daughter’s eggs to a US fertility treatment clinic to be used with donor sperm.’

‘The court’s role, however, was not to decide whether it would have permitted the mother to undergo fertility treatment using her deceased daughter’s eggs and donated sperm.

Its task was to determine whether Mr Justice Ouseley erred in concluding that the HFEA’s statutory approvals committee acted lawfully and rationally in exercising its broad discretion to refuse to authorise export of the frozen eggs.

Giving the court’s ruling, Lady Justice Arden said the challenge succeeded at three levels: “First, there was on the face of it the misstatement of certain of the evidence about [the daughter’s] consent by the [HFEA] committee.

“Second, even if what the committee meant was that there was a lack of effective consent because the appellants could not show that [the daughter] received information on certain matters, the decision was flawed because the committee pointed to the lack of certain evidence without explaining why [she] needed to receive that information and give that consent.

“The third level is that the committee did not ask the prior question of what information the Human Fertilisation and Embryology Act required to be given to [the daughter] in the circumstances of her case.”

The judge said the decision must be set aside and remitted to the statutory approvals committee of the HFEA for further consideration of the export application.’

Related Articles:

Couple win legal battle against ruling on dead daughter’s eggs- The Guardian

Woman wins appeal to use dead daughter’s eggs- BBC News

 

Monday 1st February 2016- The World Health Organisation: Films showing smoking scenes should be rated to protect children from tobacco addiction

‘WHO is calling on governments to rate movies that portray tobacco use in a bid to prevent children and adolescents from starting to smoke cigarettes and use other forms of tobacco.

Movies showing use of tobacco products have enticed millions of young people worldwide to start smoking, according to the new WHO “Smoke-free movies: from evidence to action”, the third edition since its launch in 2009.’

‘“With ever tighter restrictions on tobacco advertising, film remains one of the last channels exposing millions of adolescents to smoking imagery without restrictions,” says Dr Douglas Bettcher, WHO’s Director for the Department of Prevention of Noncommunicable Diseases.

Taking concrete steps, including rating films with tobacco scenes and displaying tobacco warnings before films with tobacco, can stop children around the world from being introduced to tobacco products and subsequent tobacco-related addiction, disability and death.

“Smoking in films can be a strong form of promotion for tobacco products,” adds Dr Bettcher. “The 180 Parties to the WHO Framework Convention on Tobacco Control (WHO FCTC) are obliged by international law to ban tobacco advertising, promotion and sponsorship.”’

‘Studies in the United States of America have shown that on-screen smoking accounts for 37% of all new adolescent smokers. In 2014, the US Centers for Disease Control and Prevention estimated that in the United States alone, exposure to on-screen smoking would recruit more than 6 million new, young smokers from among American children in 2014, of which 2 million would ultimately die from tobacco-induced diseases.

In 2014, smoking was found in 44% of all Hollywood films, and 36% of films rated for young people. Almost two thirds (59%) of top-grossing films featured tobacco imagery between 2002 and 2014. That same year, the US Surgeon General reported that adult ratings of future films with smoking would reduce smoking rates among young people in the USA by nearly one-fifth and avert 1 million tobacco-related deaths among today’s children and adolescents.’

Related Articles:

Films showing smoking scenes should be rated to protect children from tobacco addiction

Smoking in the Movies- The Centers for Disease Control and Prevention

WHO calls for adult ratings on films that feature smoking- The Telegraph

Films portraying smoking should get adult rating, says WHO- The Guardian

Friday 15th January 2016- BBC News: Plan to reduce organ donation vetoes by families

‘Bereaved families have blocked the donation of organs from 547 UK registered donors since 2010 – about one in seven cases, figures show.

NHS Blood and Transplant (NHSBT) says it will no longer seek the consent of families formally, to make such “overrides” more exceptional.’

Related Articles:

Plan to reduce organ donation vetoes by families

Organ donations vetoed by hundreds of bereaved families- BBC News

Hundreds of bereaved families blocking organ donation, according to NHS- The Independent

Letting families veto organ donations is an outrage- The Telegraph

NHS to prevent bereaved families blocking donation of relatives’ organs- The Telegraph

Wednesday 13th January 2016- BBC News: Should scientists be allowed to modify human embryos?

‘The body which regulates fertility research is to consider the first application in the UK to genetically modify human embryos.

The Human Fertilisation and Embryology Authority (HFEA) will consider an application from Dr Kathy Niakan to edit human genes for research into miscarriages.

Dr Niakan said the experiments would provide a deeper understanding of the earliest moments of human life and could reduce miscarriages.’

Related Articles:

Should scientists be allowed to modify human embryos?

Kathy Niakan: Scientist makes case to edit embryos- BBC News

Sunday 3rd January 2016- The Independent: Charity launches website to give people ‘greater control over their death’

‘A website will be launched this week that will allow people to complete an online declaration of how they wish to be treated in the final weeks of their life.

The charity behind the site said anyone who completes the document, known as an “advance decision” – detailing how someone can refuse a specific type of medical treatment or drug at some time in the future – will have greater control over their death.

Compassion in Dying said it created MyDecisions.org.uk  in response to growing concerns about how few people were planning ahead for end-of-life  treatment should they lose the ability to make their own decisions.

The website will take people through different scenarios that they may encounter if their health fails. From Thursday, users can receive a copy of their advance decision, otherwise known as a living will, or a copy of an “advance statement”.

An advance decision is legally binding, so if a healthcare professional ignores it they can be taken to court.

An advance statement differs from an advance decision in that it sets down a person’s preferences, wishes, beliefs as a guide for anyone who might have to make choices if they have lost the capacity to make decisions.’

‘Research commissioned by Compassion in Dying revealed last year that only 4 per cent of Britons have made a record of their preferences or appointed a lasting power of attorney. ‘

See:

Charity launches website to give people ‘greater control over their death’

Thursday 31st December 2015- The Guardian: Woman whose body turns food into alcohol beats drink-drive charge

‘Drunken-driving charges against a woman in upstate New York have been dismissed based on an unusual defence: her body is a brewery.

The woman was arrested while driving with a blood-alcohol level more than four times the legal limit. She then discovered she has a rare condition called “auto-brewery syndrome”, in which her digestive system converts ordinary food into alcohol, her lawyer Joseph Marusak said.

A town judge in the Buffalo suburb of Hamburg dismissed the charges after Marusak presented research by a doctor showing the woman had the previously undiagnosed condition in which high levels of yeast in her intestines fermented high-carbohydrate foods into alcohol.

The rare condition, also known as gut fermentation syndrome, was first documented in the 1970s in Japan, and both medical and legal experts in the US say it is being raised more frequently in drunken-driving cases as it is becomes more known.

“At first glance, it seems like a get-out-of-jail-free card,” said Jonathan Turley, a law professor at George Washington University. “But it’s not that easy. Courts tend to be sceptical of such claims. You have to be able to document the syndrome through recognised testing.”

The condition was first documented in the US by Barbara Cordell of Panola College in Texas, who published a case study in 2013 of a 61-year-old man who had been experiencing episodes of debilitating drunkenness without drinking liquor.

Marusak contacted Cordell for help with his client who insisted she had not had more than three drinks in the six hours before she was pulled over for erratic driving 11 October 2014. The woman was charged with driving while intoxicated when a breath test showed her blood-alcohol content to be 0.33%.

Cordell referred Marusak to Dr Anup Kanodia of Columbus, Ohio, who eventually diagnosed the woman with auto-brewery syndrome and prescribed a low-carbohydrate diet that brought the situation under control. Her case was dismissed on 9 December, leaving her free to drive without restrictions.’

See:

Woman whose body turns food into alcohol beats drink-drive charge

Wednesday 30th December 2015- The British Medical Journal: Voluntary euthanasia is now legal in Quebec, says appeal court

‘Quebec’s law permitting assisted dying and voluntary euthanasia is now in force, even though the federal government in Ottawa is still drawing up national legislation on the right to die. Quebec has been allowed to go ahead with its own law after the province’s highest court rejected a challenge led by a physicians’ group and a disabled patient.’

See:

Voluntary euthanasia is now legal in Quebec, says appeal court

Thursday 3rd December 2015- BBC News: Woman who refused treatment after losing ‘sparkle’ dies

‘A woman who rejected life-saving kidney treatment, saying she felt she had lost her “sparkle” and did not want to get old, has died, it has emerged.

The 50-year-old, known only as C, had been at the centre of litigation at the Court of Protection and last month a judge ruled she could refuse dialysis.

A solicitor representing one of her daughters said C died on Saturday.

C had damaged her kidneys when taking a drug overdose in a suicide attempt but did not want to undergo dialysis.

The court, which considers cases relating to sick and vulnerable people, had to decide if she had the mental capacity to refuse treatment, in a case brought by the trust with responsibility for her care.

The hearing was told that C’s life “had always revolved around her looks, men and material possessions”.

In a statement, one of C’s daughters told the court said: “‘Recovery’ to her does not just relate to her kidney function, but to regaining her ‘sparkle’ [her expensive, material and looks-oriented social life], which she believes she is too old to regain.”‘

‘King’s College Hospitals NHS Foundation Trust, in London, had wanted dialysis forced on C, claiming a “dysfunction of the mind” meant she could not decide for herself.

Mr Justice MacDonald dismissed the hospital trust’s application, saying C was “sovereign” of her “own body and mind” and thus “entitled” to make such a decision.

But he said many people may be horrified by C’s thinking and that the decision to refuse treatment could be described as “unwise”, with some considering it “immoral”.

His ruling was made on 13 November and it has emerged that she died 15 days later.’

Related Article:

Woman who refused treatment after losing ‘sparkle’ dies

Right-to-die socialite was diagnosed with a narcissistic personality disorder- The Telegraph

Socialite who lost her ‘sparkle’ has the right to die, court rules- The Independent

Court grants woman right to die after ‘losing her sparkle’- The Guardian

Monday 30th November 2015- BBC News: NI abortion law ‘breaches human rights’

‘Abortion legislation in Northern Ireland is in breach of human rights law, the Belfast High Court has ruled.

Currently, termination of pregnancy is only allowed if a woman’s life is at risk or there is a permanent or serious risk to her mental or physical health.

The Northern Ireland Human Rights Commission (NIHRC) brought the case to extend abortion to cases of serious foetal malformation, rape or incest.

The 1967 Abortion Act does not apply to Northern Ireland.’

‘A judicial review found the grounds for abortion should be extended in Northern Ireland.

Northern Ireland’s Attorney General John Larkin said in a brief statement that he was “profoundly disappointed” by the decision and was “considering the grounds for appeal”.

In his ruling on Monday, Mr Justice Horner said women who were the victims of sexual crime and cases of fatal foetal abnormality were entitled to exemptions in the law.

He said given that the issue was unlikely to be addressed by the Northern Ireland Executive in the foreseeable future, and that Northern Ireland citizens were entitled to “have their [European Convention on Human] rights protected by the courts”, the current legislation was in breach of their human rights.’

Related Articles:

NI abortion law ‘breaches human rights’

Northern Irish women deserve full access to abortion. Today they inched one step closer- The Telegraph